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Physical Therapist's Guide to Ankylosing Spondylitis
Ankylosing spondylitis (AS) is an inflammatory disease that causes pain and stiffness in the spine, pelvis, and other joints, like the hips, knees, feet, and shoulders. AS is a chronic (lifelong) disease, and it is hereditary. Although a majority of people who have AS carry a gene called HLA-B27, about 80% of people who have inherited the gene from a parent with AS do not develop the disease. The onset of AS is usually diagnosed in individuals between 17 and 45 years of age. Males are diagnosed 2 to 3 times more often than females, and tend to have more severe disease symptoms than females. Physical therapists help people with AS maintain productive lives by working with them to increase their strength, muscle flexibility, and joint mobility, and to improve their posture.
What is Ankylosing Spondylitis?
Ankylosing spondylitis (AS) is an inflammatory disease affecting the spine, pelvis, and joints throughout the body. AS causes abnormal bone growth, and causes joints to fuse (grow together) in the spine and in the sacroiliac joints (located between each hip and the pelvis). Vital organs like the heart, lungs, and eyes may also be affected. Rare complications include inflammation of the heart, scarring of the nerves of the spine, and kidney problems related to the long-term use of medication.
Although there is currently no cure for AS, proper treatment can help decrease the pain and stiffness associated with the disease. Medications decrease inflammation and localized swelling. If the hip joint becomes stiff and painful, total hip replacement may be performed.
How Does it Feel?
The first and most common symptom experienced with the onset of AS is pain in the sacroiliac joints and the low back. You may also gradually experience hip and shoulder pain. Pain is often accompanied by morning stiffness or stiffness after periods of prolonged inactivity, and usually improves after exercise or activity. Other common symptoms are fever, generalized fatigue, and loss of appetite.
Bony fusion or ankylosis typical of AS in the joints of the neck, spine, and hips causes progressive stiffness and can reduce your ability to turn your head, stand upright, or bend. AS can make maintaining good posture difficult, and can cause you to stoop forward. Poor posture makes it easier to lose your balance, and causes difficulty in walking, increasing the risk of falling. In advanced cases, osteoporosis (thinning of the bones) may occur, which increases the risk of fractures.
Inflammation is very common in AS. The inflammation usually is felt at the sites where ligaments and tendons attach to the bone. These sites are tender to touch and sometimes called “hot spots.” The heel and the back of the foot are common sites for tender spots, which can cause difficulty in standing and walking.
People with AS may develop difficulty breathing because the lungs and the joints where the ribs and spine attach become stiff, limiting chest expansion and causing shortness of breath, and increasing the risk of chest infections.
AS can also affect the soft tissues of the eye (in about 40% of cases), resulting in swelling in the eye (uveitis). Individuals may also experience eye redness, pain, "floaters," and an increased sensitivity to light.
How Is It Diagnosed?
If you see your physical therapist first for symptoms, such as chronic back pain, the physical therapist will take your medical history, and ask you to describe how your symptoms occurred, what symptoms you experienced first, and if they get worse with inactivity and better with activity.
Your physical therapist will perform a thorough evaluation of your posture, and the range of motion (movement) of your spine, hips, knees, and shoulders. Your physical therapist will also check to see if you have any tender spots around your spine, hips, and sacroiliac joints, and gently assess your ability to bend forward, bend backward, squat, and walk.
When your physical therapist suspects AS, your physical therapist will also measure your chest expansion when you take a deep breath and exhale. That will indicate how the AS may be affecting your rib joints and breathing function.
Your physical therapist will also observe your ability to walk and how you move from sitting to standing, and test your balance to determine if you have a fall risk.
If your physical therapist suspects AS, the physical therapist will consult with your physician for further tests, such as an X-ray or MRI of the spine and sacroiliac joints. Blood tests and genetic testing may also be recommended; a blood test positive for the HLA-B27 gene can indicate a risk of developing AS.
How Can a Physical Therapist Help?
Physical therapy will help improve your posture and joint mobility, reduce pain, and help you perform your everyday functional activities more easily. Your physical therapist may teach you:
Posture Training to improve your posture and help you avoid slouching or forward bending. This training is important to ensure that you maintain an upright posture.
Strengthening Exercises to strengthen your back and abdominal muscles and help you maintain proper posture and walking, and perform your activities of daily living.
Flexibility Exercises to maintain and improve joint mobility. Exercises for your leg and chest muscles, and gentle range-of-motion exercises help keep the spine and other joints from getting stiff. Aquatic exercises have been shown to decrease joint pain and improve movement in patients with AS.
Stretching Exercises for the trunk muscles to improve chest expansion.
Deep-Breathing Exercises to improve chest expansion and help you breathe better. Improved breathing increases oxygen and blood flow in the body, which can help decrease stiffness, pain, and fatigue.
Pain Management Techniques, such as using ice or heat packs to manage inflammation and pain in the joints. Your physical therapist may prescribe a TENS unit, which is an electrical stimulation treatment used to alleviate pain.
Individual Activities to improve your functional ability and energy, and help reduce fatigue. Your physical therapist will teach you how to move your body efficiently when performing daily activities to avoid strain. Your physical therapist may recommend using an assistive device, such as a cane or walker to improve your walking, lessen pain, and lower your risk of falling.
Your physical therapist will partner with you to ensure that you maintain your best posture, flexibility, joint mobility, and muscle strength, so you can lead a productive, fulfilling life. We are here to help!
After Surgery
If your hip joints have developed severe arthritis, your physician may recommend a total hip replacement. Your physical therapist will help you improve your walking, your joint range of motion, and your leg strength following surgery, so you can safely return to your usual daily activities.
Can this Injury or Condition be Prevented?
AS is an inherited disease and it cannot be prevented. However, functional limitations may be reduced or prevented by participating daily in a program of posture correction, stretching, and strengthening exercises.